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How to Tell When We Will Die

On Pain, Disability, and Doom

Johanna Hedva

$49.99

Hardback

Forthcoming
Pre-Order now

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English
Zando
01 January 2025
The long-awaited essay collection from one of the most influential voices in disability activism that detonates a bomb in our collective understanding of care and illness, showing us that sickness is a fact of life.

In the wake of the 2014 Ferguson riots, and sick with a chronic condition that rendered them housebound, Johanna Hedva turned to the page to ask: How do you throw a brick through the window of a bank if you can't get out of bed? It was not long before this essay, 'Sick Woman Theory', became a seminal work on disability, because in reframing illness as not just a biological experience but a social one, Hedva argues that under capitalism

a system that limits our worth to the productivity of our bodies

we must reach for the revolutionary act of caring for ourselves and others.

How to Tell When We Will Die expands upon Hedva's paradigm-shifting perspective in a series of slyly subversive and razor-sharp essays that range from the theoretical to the personal

from Deborah Levy and Susan Sontag to wrestling, kink, mysticism, death, and the color yellow. Drawing from their experiences with America's byzantine healthcare system, and considering archetypes they call The Psychotic Woman, The Freak, and The Hag in Charge, Hedva offers a bracing indictment of the politics that exploit sickness

relying on and fueling ableism

to the detriment of us all.

With the insight of Anne Boyer's The Undying and Leslie Jamison's The Empathy Exams, and the wit of Samantha Irby, Hedva's debut collection upends our collective understanding of disability. In their radical reimagining of a world where care and pain are symbiotic, and our bodies are allowed to live free and well, Hedva implores us to remember that illness is neither an inconvenience or inevitability, but an enlivening and elemental part of being alive.
By:  
Imprint:   Zando
Country of Publication:   United States
Dimensions:   Height: 229mm,  Width: 152mm, 
ISBN:   9781638931164
ISBN 10:   163893116X
Pages:   384
Publication Date:  
Audience:   General/trade ,  ELT Advanced
Format:   Hardback
Publisher's Status:   Forthcoming

Johanna Hedva (they/them) is a Korean American writer, artist, and musician who was raised in Los Angeles by a family of witches and now lives in LA and Berlin. They are the author of the novels Your Love Is Not Good and On Hell, and the collection of poetry, performances, and essays, Minerva the Miscarriage of the Brain. Their artwork has been shown internationally, and their albums are Black Moon Lilith in Pisces in the 4th House and The Sun and The Moon.

Reviews for How to Tell When We Will Die: On Pain, Disability, and Doom

“Hedva, a committed reader of queer and female artists, creates, in reaction to their influences, a new construction of themself: a nonbinary and Asian disabled intellectual, as a lens through which to see the world. By centering their experiences into a cohered perspective, they make a contribution on the fronts of fragility and rage, justice and systems, desire and limitation that expands pre-existing frameworks for conceptualizing human experience.” —Sarah Schulman, author of Let the Record Show: A Political History of ACT UP New York, 1987-1993 “Like many, I have been waiting patiently for Johanna Hedva's essay collection and How to Tell When We Will Die comes now at the perfect moment in the culture. A decade in the making, Hedva adds to and updates the classics of their oeuvre—but the book goes beyond even that. We journey from their body and mind to learning about their mother, ancestors, relationship to biculturalism in all its forms, their take on queerness and its intersection with illness. There is so much beauty and horror and tenderness and humor and mysticism in these pages that reading it feels like living infinite lifetimes within the topic dearest to me, that should be dearest to everyone. This transcendent collection operates like a kaleidoscope of memoir, manifesto, cultural criticism, even found object, and how Hedva tackles and untangles every aspect of their identity made me feel like just maybe the people I am rooting for most will win in the end!” —Porochista Khakpour, author of Sick: A Memoir “We are so excited by the beautiful movement this book could inspire as we work to reconsider, reframe, and reimagine the world around us. We were founded by creatives and artists, for creatives and artists, from a sincere and passionate determination to disrupt the status quo while calling others to rise to the same. It was so inspiring to find that same spirit in your writing and your vision, one that acknowledges hard realities as much as it celebrates joy and being, that questions as much as it empathizes, that will quote Susan Sontag and reference astrology alike. We very much hope this is the beginning of a long, thoughtful, rebellious, doom metal dialogue together that takes us all to new and wonderful places.” —Hillman Grad Books


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