The Patient's Wish to Die: Research, Ethics, and Palliative Care

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Christoph Rehmann-Sutter (Professor of Theory and Ethics in the Biosciences, Institute for the History of Medicine and Science Studies, Lubeck, Germany) Heike Gudat (Head of the hospital for palliative care, Hospiz im Park, Hospital for Palliative Care, Arlesheim, Switzerland)

The Patient's Wish to Die

Research, Ethics, and Palliative Care

Christoph Rehmann-Sutter (Professor of Theory and Ethics in the Biosciences, Institute for the History of Medicine and Science Studies, Lubeck, Germany), Heike Gudat (Head of the hospital for palliative care, Hospiz im Park, Hospital for Palliative Care, Arlesheim, Switzerland), Kathrin Ohnsorge (Researcher at the hospital for palliative care, Hospiz im Park, Hospital for Palliative Care, Arlesheim, Switzerland)

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English

Oxford University Press
25 June 2015

Oncology; Palliative medicine; Terminal care nursing

It presents the best available knowledge and research methodologies about patients' wishes at the end-of-life, together with a series of ethical views and a discussion about the clinical implications for palliative care.

Edited by: Christoph Rehmann-Sutter (Professor of Theory and Ethics in the Biosciences Institute for the History of Medicine and Science Studies Lubeck Germany), Heike Gudat (Head of the hospital for palliative care, Hospiz im Park, Hospital for Palliative Care, Arlesheim, Switzerland), Kathrin Ohnsorge (Researcher at the hospital for palliative care, Hospiz im Park, Hospital for Palliative Care, Arlesheim, Switzerland)
Imprint: Oxford University Press
Country of Publication: United Kingdom
Dimensions: Height: 234mm, Width: 155mm, Spine: 16mm
Weight: 416g
ISBN: 9780198713982
ISBN 10: 0198713983
Pages: 288
Publication Date: 25 June 2015
Audience: College/higher education , Professional and scholarly , Further / Higher Education , Undergraduate
Format: Paperback
Publisher's Status: Active

Section One: Introduction 1: Christoph Rehmann-Sutter, Heike Gudat, Kathrin Ohnsorge: Opening: Why is it important to know about patients' wishes to die Section Two: Research 2: Yasmin Gunaratnam: Illness narratives, meaning making and epistemic injustice in research at the end of life 3: Nessa Coyle and Lois Sculco: Expressed desire for hastened death: a phenomenological inquiry 4: Nessa Coyle: Commentary: 10 years later - a nursing perspective 5: Luc Deliens and Tinne Smets: Euthanasia (requests) after the implementation of the euthanasia law in 2002 in Belgium. Results of empirical studies in Flanders, Belgium 6: Tracy A. Schroepfer: The journey to understanding the wish to hasten death 7: Rinat Nissim, Chris Lo, and Gary Rodin: The desire for hastened death in patients in palliative care 8: Kathrin Ohnsorge: Intentions, motivations and social interactions regarding a wish to die 9: Alexandre Mauron: Acting on a wish to die at the end of life. The Swiss situation 10: Bregje D. Onwuteaka-Philipsen: Understanding older people's wish to die 11: Dialogue Intermezzo Part I Section Three: Ethics 12: Lars Johan Materstvedt: Caring and killing in the clinic: the argument of self-determination 13: Marian Verkerk: Towards responsive knowing in matters of life and death 14: Guy Widdershoven, Margreet Stolper and Bert Molewijk: Dealing with dilemmas around patients' wishes to die: Moral Case Deliberation in a Dutch hospice 15: Christoph Rehmann-Sutter: End-of-life ethics from the perspectives of patients' wishes 16: Dialogue Intermezzo Part II Section Four: Practice 17: H. Christof Muller-Busch: Issues of palliative medicine in end-of-life care 18: Settimio Monteverde: Spirituality at the bedside: negotiating the meaning of dying 19: Heike Gudat, Christoph Rehmann-Sutter and Kathrin Ohnsorge: Communication on wishes to die 20: Heike Gudat: From understanding to patient centred management: clinical pictures of a wish to die 21: Cristina Monforte-Royo, Albert Balaguer and Christian Villavicencio-Chavez: What does the wish to hasten death mean for the palliative patient? Clinical implications Section Five: Conclusion 22: Concluding Dialogue

Christoph Rehmann-Sutter is Professor of Theory and Ethics in the Biosciences at the University of Lubeck in Germany and is also a visiting professor at King's College, London. After a diploma in molecular biology, he studied philosophy and sociology. In 1996 he founded the Unit of Bioethics at the University of Basel, Switzerland, and he was president of the Swiss National Advisory Commission on Biomedical Ethics from 2001 to 2009. Current research interests include the anthropology of genomics, the ethics of transplantation of blood stem cells between siblings, and moral issues in end-of-life care. He has published more than 200 scholarly papers. Heike Gudat is physician and specialised in palliative care. Since 2000 she has been the medical head of the HOSPIZ IM PARK, an independent hospital for palliative and end of life care in the region of Basel, Switzerland. After medical education at the University of Basel 1988 she specialised in internal medicine, also experiencing the special fields of rehabilitation, gerontology and hematology. From 1992-1994 studies of experimental cytogenetics at the University of Lubeck (Prof. Ch. Fonatsch), supported by the Swiss National Foundation. Since 1996 specialisation in palliative care. Within regular teaching activities Heike Gudat has a teaching assignment for palliative care at the University of Basel. Together with Settimio Monteverde she developed interdisciplinary palliative care training courses for primary care professionals. Current research interests include wishes to die in end of life care situations and implementation of palliative care in family medicine. Kathrin Ohnsorge is a researcher in bioethics currently working at the HOSPIZ IM PARK, a hospice close to Basel in Switzerland. After her graduation in philosophy, she obtained a European Master in Bioethics from the Universities of Leuven, Nijmengen, Basel and Padua. From 2001 to 2012, she worked at the University of Basel in various research projects regarding ethical issues in end-of-life care. Her current research interests are in ethical issues in end-of-life care and long term care and in narrative and hermeneutic approaches to bioethics. She teaches also bioethics in two postgraduate programs at the University of Padua.

Reviews for The Patient's Wish to Die: Research, Ethics, and Palliative Care

If you want to know more about the genesis of wishes to die, and some guidance as to how we might best deal with them, both as individual healthcare practitioners and as a society, then you will find this book of interest. Dr Roger Woodruff, Hospice Care