Pathological Demand Avoidance Syndrome - My Daughter is Not Naughty

Jane Alison Sherwin, Phil Christie, Ruth Fidler

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English

Jessica Kingsley Publishers
15 January 2015

Child & developmental psychology; Health & Self-Help; Coping with disability

Jane Alison Sherwin's honest and uplifting account provides insight into the challenges of bringing up a child with Pathological Demand Avoidance (PDA).

After years of misdiagnosis, Jane's daughter, Mollie, was diagnosed with PDA at the age of seven, and we follow her experiences pre and post diagnosis to age 10 as she attends school, interacts with the outside world and approaches adolescence. Throughout, Jane provides commentary on her daughter's behaviour and the impact it has on her family, explaining the 'why' of PDA traits, including the need for control, meltdowns, obsessive behaviour and sensory issues. She reveals the strategies that have worked for Mollie and provides essential advice and information on obtaining a diagnosis and raising awareness of PDA. The book also includes an interview with Mollie.

Full of advice and support, and with a focus on understanding the child and how he or she sees the world, this book will be of immeasurable value to the parents and families of children with PDA as well as the professionals working with them, particularly teachers and teaching assistants, SEN co-ordinators, psychologists, outreach workers and social workers.

By: Jane Alison Sherwin
Foreword by: Phil Christie
Contributions by: Ruth Fidler
Imprint: Jessica Kingsley Publishers
Country of Publication: United Kingdom
Dimensions: Height: 214mm, Width: 140mm, Spine: 32mm
Weight: 359g
ISBN: 9781849056144
ISBN 10: 1849056145
Pages: 328
Publication Date: 15 January 2015
Audience: Professional and scholarly , Undergraduate
Format: Paperback
Publisher's Status: Active

Introduction and Foreword by Phil Christie. I. The Early Years. 1. The Key Diagnostic Features of PDA. 2. The Early Warning Signs. 3. Nursery School Begins and Boom! II. The School Years. 4. Things Go from Bad to Worse. 5. A New School and A New Start. 6. An End to Formal Education. III. Understanding Mollie's PDA Behaviours. 7. Difficulties with Social Understanding and Verbal Communication. 8. Routine, Predictability, Fantasy and Obsessions. 9. Summing Up the Difficulties and Empathising with Mollie. IV. Breaking the PDA Cycle. 10. The Cycle of Demand, Control, Avoidance and Meltdown. 11. Strategies that Help Mollie Feel in Control. 12. Strategies for Other Areas of Difficulty – Sensory Issues, Sleep, Transitions, Obsessions, Sexualised Behaviour and More. 13. Getting Schooling Right. 14. PDA Plus. V. Learning to Interact in the Neurotypical World. 15. Mollie Dips Her Toes in the Outside World. 16. Strategies for Teaching the Social Laws and Customs Outside of the Family. VI. Entering the Adolescent Years and Looking to Adulthood. 17. Periods and Puberty. 18. Children with PDA Grow into Adults with PDA. VII. How PDA Has Affected Our Family. 19. Family Dynamics. 20. How Living with PDA Affected My Own Mental Health. 21. Supporting a Family Living with PDA. VIII. Diagnosis. 22. Why Recognition and Diagnosis is So Important. 23. Navigating the Bumpy and Winding Road to Diagnosis. IX. Final Thoughts. 24. The Funny and Endearing Side of PDA. 25. An Interview with Mollie. 26. Our Current Situation and My Hopes for the Future. Appendices. I. A Complete Profile of Mollie's Behaviours and Traits. II. Frequently Asked Questions. III. Useful Resources. References.

Jane Alison Sherwin began a successful career in the family business at the age of 19. When her daughter began displaying difficulties in school, eventually being diagnosed with Pathological Demand Avoidance Syndrome (PDA), Jane gave up work to concentrate on being her daughter's carer, teacher, advocate, psychologist, psychiatrist and her mum all rolled into one. The same drive that made her successful in the workplace was now concentrated on her family and a need to understand what drove their unique difficulties. Jane has no professional qualifications in the field of PDA; her knowledge has been self-taught through literature, media and life experience. She lives in Staffordshire, UK.

Reviews for Pathological Demand Avoidance Syndrome - My Daughter is Not Naughty

Knowledge and understanding of PDA is still at an early stage, but there are exciting developments happening in diagnostic understanding, greater awareness of successful educational approaches and the perspective that is now being gained from further research...Jane Sherwin's book, the account of the mother of Mollie, a ten-year-old girl with PDA, will add to that knowledge by highlighting the perspective of a parent, as well as giving fascinating glimpses into how the world seems from Mollie's point of view. -- from the foreword and introduction by Phil Christie, Consultant Child Psychologist, The Elizabeth Newson Centre, UK My Daughter is Not Naughty charts the up and down journey of Jane and her daughter Mollie as they discover, and then begin learning to live with, Pathological Demand Avoidance syndrome. It is a down-to-earth read that tackles difficult issues with refreshing honesty, but is delivered with the warmth and sensitivity of a mother's touch. This may be Jane and Mollie's story, but the degree to which it will resonate with other PDA parents, means it could easily be their story too. -- Neville Starnes, PDA parent and member of the PDA Society's management committee, UK Sherwin comes to this subject as a parent as opposed to a professional and her knowledge is self-taught as she came to terms with her daughter's difficulties... (The author) outlines the strategies that she has developed to cope with Mollie's meltdowns and anxieties and her 'huge issues' with sleep... Sherwin writes frankly about how Mollie's PDA has affected her personally and her family and this book is a moving and informative guide. -- Mary Mountstephen, author, editor * SEN Magazine *