Heredity and Hope

The Case for Genetic Screening

Ruth Schwartz COWAN

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Hardback

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English

Harvard University Press
20 May 2008

Medical screening; Medical genetics

The secrets locked in our genes are being revealed, and we find ourselves both enthused and frightened about what that portends. We look forward to curing disease and alleviating suffering-for our children as well as for ourselves-but we also worry about delving too deeply into the double helix. Abuses perpetrated by eugenicists-from involuntary sterilization to murder-continue to taint our feelings about genetic screening.

Yet, as Ruth Schwartz Cowan reveals, modern genetic screening has been practiced since 1960, benefiting millions of women and children all over the world. She persuasively argues that new forms of screening-prenatal, newborn, and carrier testing-are both morally right and politically acceptable. Medical genetics, built on the desire of parents and physicians to reduce suffering and increase personal freedom, not on the desire to improve the human race, is in fact an entirely different enterprise from eugenics.

Cowan's narrative moves from an account of the interwoven histories of genetics and eugenics in the first half of the twentieth century, to the development of new forms of genetic screening after mid-century. It includes illuminating chapters on the often misunderstood testing programs for sickle cell anemia, and on the world's only mandated premarital screening programs, both of them on the island of Cyprus.

Neither minimizing the difficulty of the choices that modern genetics has created for us nor fearing them, Cowan bravely and compassionately argues that we can improve the quality of our own lives and the lives of our children by using the modern science and technology of genetic screening responsibly.

By: Ruth Schwartz COWAN
Imprint: Harvard University Press
Country of Publication: United States
Dimensions: Height: 210mm, Width: 140mm, Spine: 24mm
Weight: 458g
ISBN: 9780674024243
ISBN 10: 0674024249
Pages: 304
Publication Date: 20 May 2008
Audience: Professional and scholarly , Undergraduate
Format: Hardback
Publisher's Status: Active

* Introduction * Many Varieties of Beautiful Inheritance * Eugenics and the Genealogical Fallacy * Pronatal Motives and Prenatal Diagnosis * No Matter What! This Has to Stop! * Genetic Screening and Genocidal Claims * Parents, Politicians, Physicians, and Priests * Conclusion * Further Reading * Notes * Acknowledgments * Index

Ruth Schwartz Cowan is Professor of History and Sociology of Science, University of Pennsylvania.

Reviews for Heredity and Hope: The Case for Genetic Screening

Modern healers may claim science to be the foundation of their work, but the key is, in fact, persuasion: to heed advice, to push and persevere, to hope. As the genome is further dissected and better understood, no family of diseases warrants more genuine hope for successful management than genetic conditions. Cowan understands that we must all share that hope for the campaign to be successful. -- Hugh Young Rienhoff Jr. Nature 20080522