Embodied Narratives: Protecting Identity Interests through Ethical Governance of Bioinformation

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Emily Postan (University of Edinburgh)

Embodied Narratives

Protecting Identity Interests through Ethical Governance of Bioinformation

Emily Postan (University of Edinburgh)

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English

Cambridge University Press
16 November 2023

Legal ethics & professional conduct; Medical & healthcare law; Medical ethics & professional conduct; Forensic medicine; Bio-ethics

Series: Cambridge Bioethics and Law

Increasing quantities of information about our health, bodies, and biological relationships are being generated by health technologies, research, and surveillance. This escalation presents challenges to us all when it comes to deciding how to manage this information and what should be disclosed to the very people it describes. This book establishes the ethical imperative to take seriously the potential impacts on our identities of encountering bioinformation about ourselves. Emily Postan argues that identity interests in accessing personal bioinformation are currently under-protected in law and often linked to problematic bio-essentialist assumptions. Drawing on a picture of identity constructed through embodied self-narratives, and examples of people's encounters with diverse kinds of information, Postan addresses these gaps. This book provides a robust account of the source, scope, and ethical significance of our identity-related interests in accessing – and not accessing – bioinformation about ourselves, and the need for disclosure practices to respond appropriately. This title is also available as Open Access on Cambridge Core.

By: Emily Postan (University of Edinburgh)
Imprint: Cambridge University Press
Country of Publication: United Kingdom
Dimensions: Height: 229mm, Width: 152mm, Spine: 17mm
Weight: 459g
ISBN: 9781108718196
ISBN 10: 1108718191
Series: Cambridge Bioethics and Law
Pages: 314
Publication Date: 16 November 2023
Audience: General/trade , ELT Advanced
Format: Paperback
Publisher's Status: Active

1. Attending to identity; 2. Mapping the landscape; 3. Narrative self-constitution; 4. Bioinformation in embodied identity narratives; 5. Encounters with bioinformation: three examples; 6. Locating identity interests; 7. Responsibilities for disclosure; 8. Protecting identity in practice.

Emily Postan is a chancellor's fellow in Bioethics at the University of Edinburgh Law School and a deputy director of the J Kenyon Mason Institute for Medicine Life Sciences and the Law. Her principal research interests lie in the ethical and regulatory implications of the impacts of health technologies and health data on our identities, group memberships, and relationships with others. Her wider research includes work in neuroethics, reproductive ethics, and regulation of health research.

Reviews for Embodied Narratives: Protecting Identity Interests through Ethical Governance of Bioinformation

'… this book has something to offer everyone who is interested in narrative identity, the ethics of accessing personal bioinformation, or both.' David DeGrazia, Bioethics