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English
Academic Press Inc
01 November 2024
Deciding with Children in Pediatrics: Children’s Participation in Healthcare Decision-making provides the ethical underpinning and offers practical strategies to foster meaningful participation of children in decisions affecting their healthcare. It will assist clinicians to bring forward the perspectives and values of the child, ensuring their preferences are incorporated into decision-making or appropriately justified when this is not possible. This is to both improve healthcare delivery and serve the best interests of children— now and as decision-makers in the future.

This book reviews theories underpinning the concept of deciding with children and explores how pediatric decision-making is standardly managed. It then proposes a model for making healthcare decisions with children. A panel of experienced clinicians and ethicists demonstrate, via a series of case studies, how to promote children’s participation across a variety of clinical areas, child ages, and developmental stages. It concludes with a review of questions, concerns, and challenges. Deciding with Children in Pediatrics: Children’s Participation in Healthcare Decision-making helps bridge the gap between philosophy and practical clinical ethics and creates a frame of reference for children’s healthcare providers.
Edited by:   , , , , , , , , , ,
Imprint:   Academic Press Inc
Country of Publication:   United States
Dimensions:   Height: 235mm,  Width: 191mm, 
Weight:   450g
ISBN:   9780443223235
ISBN 10:   0443223238
Pages:   202
Publication Date:  
Audience:   Professional and scholarly ,  Undergraduate
Format:   Paperback
Publisher's Status:   Active
PART A: WHY DECIDE WITH CHILDREN? THEORIES UNDERPINNING THE CONCEPT. WAYS OF DOING IT- PAST AND PRESENT 1. Ethical Theory and Grounding 2. Neurological and Psychosocial Development 3. Limitations in Current Approaches to Understanding the Role of Children and Adolescents in Healthcare Decision-making PART B: DEVELOPING A MODEL FOR DECIDING WITH CHILDREN 4. Evolution from Infant to Young Adult- Pas de Deux to Pas de Trois, Involving the Child in Shared Decision-making 5. Deciding with Children: What is the Evidence? What is the Research Telling Us? 6. Pushing Back against Deciding with Children PART C: PRACTICAL ASPECTS OF DECIDING WITH CHILDREN 7. Decision-making with Young Children (Including Those with Autistic Spectrum Disorder) 8. Decision-making with Adolescents 9. Deciding with Children When the Stakes are High (Oncology) 10. Deciding with Children — Beyond Disability 11. Deciding with Children — Surgery 12. Deciding with Children Who Know More Than You — Chronic Disease (CF T1DM) 13. Giving Voice: Allied Health as Supporters of Children’s Decision-making 14. Giving Voice when No-one is Listening. The Role for Nurses in Deciding with Children PART D: QUESTIONS, CONCERNS AND CHALLENGES 15. Conclusion

Professor John Massie is the Clinical Director of the Children’s Bioethics Centre and senior consultant in the Department of Respiratory and Sleep Medicine, The Royal Children’s Hospital, Melbourne, Australia. He is also a Professorial Fellow, Department of Paediatrics, University of Melbourne. In his clinical role, John looks after children with neuro-disability requiring ventilator support and also works in the RCH cystic fibrosis clinic. At the CBC, John provides clinical leadership, liaison with clinical staff, ethics advice to RCH executive and supports the CBC building capacity in bioethics across the campus. John has a particular interest in decision-making with children. He has published a number of papers and book chapters relating to ethical issues in paediatric respiratory medicine and the medical humanities. John is the host of the CBC podcast show, Essential Ethics. Dr Georgina Hall is a Clinical Ethicist at the CBC. She is trained in Bioethics (MBioeth, Monash, PhD Bioeth University of Melbourne) and communications (BAJourn, RMIT). Georgina has been involved with the Centre since its inception in 2008. She oversees the development and delivery of a wide range of traditional and innovative education and training programs within the Centre aimed at advancing the ethical literacy of all hospital staff. She is convenor of the monthly Bioethics Forum and a member of the Clinical Ethics Response Group. Her research interests include reproductive ethics and IVF access decision-making, the child's voice in pediatrics and the impact and implications of social media, AI and media coverage on healthcare delivery. Professor Lynn Gillam is the Academic Director and Clinical Ethicist at the Children’s Bioethics Centre. She is an experienced clinical ethicist, originally trained in philosophy (MA, 1988, Oxon) and bioethics (PhD, Monash, 2000). Lynn is also Professor in Health Ethics at the University of Melbourne, in the Department of Paediatrics. At the CBC, Lynn leads clinical ethics case consultations, ethics rounds and education sessions for clinical departments at The Royal Children’s Hospital, Melbourne, Australia. She also provides policy advice and leads research into a range of issues in paediatric clinical ethics - including end of life decision-making, management of differences of sex development, information-giving to children, and parental refusal of treatment.

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