Like the first edition, this is a seminal textbook for the advanced practice nursing care of the seriously ill and dying. This comprehensive work addresses all aspects of palliative care including physical, psychological, social, and spiritual needs. It brings to the forefront current issues of health equity, managing through crisis, and meeting the needs of diverse populations. Each chapter contains case examples and a strong evidence base to support the highest quality of care. The text is written by leaders in the field and includes authors who have pioneered the role of the advanced practice nurse in palliative care. This volume offers advanced practice content and practical resources for clinical practice across all settings of care and encompassing all ages, from pediatrics to geriatrics.
This newly revised edition has been reorganized to meet the needs of the APRN according to role delineation and practice issues. It offers foundation information on leadership, practice, and the various roles of the APRN as an administrator, educator, policy advocate, and researcher. The various settings of APRN work includes acute care settings (clinical care unit, intensive care unit, and emergency department), clinic (specialty care, primary care, and palliative care), community, rehabilitation, residential facilities, and telehealth. This edition also gives particular attention to special populations, including chapters on health disparities, economic disadvantages for urban dwellers, members of the LGBTQ+ community, Veterans, and Survivorship. There are sections wholly devoted to pediatric care, end of life communication, and the ethics APRNs have to navigate on a daily basis. Written by current APRNs for fellow APRNs, this text provides practical resources for clinical practice across a variety of topics.
"Preface Acknowledgments List of Contributors Section I The Palliative APRN 1 Palliative APRN Practice and Leadership: Past, Present, and Future Constance Dahlin and Patrick J. Coyne 2 Fundamental Skills and Education for the Generalist and Specialist Palliative APRN Dorothy Wholihan, Charles Tilley, and Adrienne Rudden 3 Credentialing, Certification, and Scope of Practice Issues for the Palliative APRN Kerstin Lea Lappen, Matthew McGraw, and Kate Meyer Section II Palliative APRN Roles 4 The Palliative APRN in Administration Karen Mulvihill 5 The Palliative APRN in Nursing Education Carrie L. Cormack and Kathleen O. Lindell 6 The Palliative APRN in Policy and Payment Models Marian Grant 7 The Palliative APRN in Research and Evidence-Based Practice Janice Linton and Joan G. Carpenter Section III Clinical Settings of Palliative APRNs 8 The Palliative APRN in the Medical, Surgical, and Geriatrics Patient Care Unit Phyllis B. Whitehead and Carolyn White 9 The Palliative APRN in the Intensive Care Setting Clareen Wiencek 10 The Palliative APRN in the Emergency Department Sarah Loschiavo and Angela Starkweather 11 The Palliative APRN in the Palliative Care Clinic Brooke Smith and Lisa A. Stephens 12 The Palliative APRN in Primary Care Rosemary Gorman, Dorothy Wholihan, and Sarah Bender 13 The Palliative APRN in Specialty Cardiology Beth Fahlberg, Ann Laramee, and Erin Donaho 14 The Palliative APRN in the Community Setting Nicole DePace 15 The Palliative and Hospice APRN in Hospice and Home Health Programs Rikki N. Hooper, Chari Price, and Jamie Lee Rouse 16 The Palliative APRN in Rehabilitation Lorie Resendes Trainor 17 The Palliative APRN in Telehealth Katherine Kyle and Constance Dahlin 18 The Palliative APRN in the Rural Community Traci Sickich 19 The Palliative APRN in Residential Facilities Melissa McClean and Victoria Nalls Section IV Populations at Risk 20 Health Disparities in Palliative Care and Social Determinants of Health Alma Y. Dixon and Cecilia R. Motschenbacher 21 Economically Disadvantaged Urban Dwellers Natasha Curry 22 Inclusive Palliative Care within the LGBTQ+ Community Jessica Nymeyer 23 Care of Veterans with Palliative Care Needs Alice C. Foy, Robert David Rice, and Joseph Albert Melocoton 24 Recurrent Disease and Long-Term Survivorship Denice Economou and Brittany Bradford Section V Pediatric Palliative Care 25 The Pediatric Palliative APRN Cheryl Ann Thaxton and Nicole Sartor 26 The Pediatric Palliative APRN in the Acute Care Setting Faith Kinnear and Gina Santucci 27 The Pediatric Palliative APRN in Perinatal and Neonatal Palliative Care Maggie C. Root and Mallory Fossa 28 The Pediatric Palliative APRN in the Clinic Alice Bass and Vanessa Battista 29 The Pediatric Palliative APRN in Oncology Amy Corey Haskamp and Joanne M. Greene 30 The Pediatric Palliative APRN in the Community Joan ""Jody"" Chrastek and Jaime Hensel 31 Communication in Pediatric Palliative Care Mallory Fossa, Julia McBee, and Rachel Rusch Section VI Communication in Palliative Care 32 Advance Care Planning: Advance Directives, Medical Order Sets, and Surrogate Decision-Making Hannah N. Farfour 33 Family Meetings Jennifer Gentry, Kerrith McDowell, and Paula McKinzie 34 Communication at the End of Life Marlene E. McHugh, Penelope R. Buschman, and Susan M. Delisle Section VII Psychosocial, Cultural, and Spiritual Aspects of Care 35 Culturally Respectful Palliative Care Helen Foley and Polly Mazanec 36 Ensuring Quality Spiritual Care Betty Ferrell 37 Life Review Jamil Davis, Mimi Jenko, and James C. Pace 38 Grief and Bereavement Katharine Adelstein and Elizabeth Archer-Nanda Section VIII Symptoms 39 Anorexia and Cachexia Robert Smeltz and Renata Shabin 40 Bowel Symptoms Kimberly Chow and Lauren Koranteng 41 Fatigue Shila Pandey 42 Nausea and Vomiting Katherine E. DeMarco 43 Pain Judith A. Paice 44 Respiratory Symptoms Ember S. Moore and Kathleen Broglio 45 Cognitive Impairment Abraham A. Brody and Donna E. McCabe 46 Serious Mental Illness Kristyn Pellecchia and Ryan Murphy 47 Patients with Substance Use Disorders and Dual Diagnoses Jeannine M. Brant and Tonya Edwards 48 Anxiety Kira Stalhandske 49 Delirium Bonnie D. Evans and Erica J. Hickey 50 Depression and Suicide John Chovan 51 Palliative Emergencies Ann Quinn Syrett, Marcia J. Buckley, and Beth Carlson 52 Challenging Symptoms: Pruritus, Hiccups, Dry Mouth, Fevers, and Sleep Disorders Barton T. Bobb and Devon S. Wojcikewych Section IX Ethical Considerations 53 Navigating Ethical Dilemmas Nessa Coyle and Timothy W. Kirk 54 Discontinuation of Cardiac Therapies Patricia Maani Fogelman and Janine A. Gerringer 55 Discontinuation of Respiratory Therapies Brenna Winn 56 Discontinuation of Other Life-Sustaining Therapies Kathy Plakovic and Jennifer Donoghue 57 Palliative Sedation David Collett and Kelly Baxter Appendix I Palliative APRN Billing and Coding Constance Dahlin Appendix II Perinatal and Pediatric Pain and Symptom Tables Constance Dahlin, Amy Corey Haskamp, Joanne Greene, Maggie Root, Mallory Fossa, Faith Kinnear, Alice Bass, Nicole Sarter, Gina Santucci, Cheryl Thaxton, Jaime Hensel, Jody Chrastek, and Vanessa Battista Index"
Constance Dahlin, MSN, ANP-BC, ACHPN®, FPCN, FAAN is a palliative care clinician, educator, author, consultant, and leader. She received her Master in the Science of Nursing in Oncology Nursing and her Post- Master's Certificate in Adult Primary Care at the MGH Institute of Health Professions. Ms. Dahlin is a Fellow of the American Academy of Nursing, and a Fellow of Hospice and Palliative Nursing. She was the 2011 NBCHPN - Certified ACHPN of the Year, a 2016 recipient of a Cambia Health Foundation Sojourns Scholar Award and the 2020 HPNA Distinguished Nursing Practice Award. She was named a 2018 Visionary in Hospice and Palliative Medicine. She has served on various national committees and workgroups, authored peer reviewed articles, chapters, and curricula as well as presented nationally and internationally. Patrick J. Coyne, MSN, ACNS-BC, ACHPN, FAAN, FPCN is Clinical Nurse Specialist, Assistant Professor, and Director for Palliative Care at the Medical University of South Carolina in Charleston, SC, a Circle of Life awarded program. He developed and oversees an interdisciplinary team of health care professionals in providing exceptional palliative care. Mr. Coyne serves as a member of institution's Medical and Nursing faculty. Previously, he was clinical director of the Virginia Commonwealth University Massey Cancer Palliative Care Service where he developed an inpatient unit and worked on state-wide initiatives to improve palliative care. Mr. Coyne served on the National Board for Certification of Hospice and Palliative Nurses and the Hospice and Palliative Nurses Association. He is Co-PI for several grants to educate rural and community APRNs and health providers on primary palliative care. Mr. Coyne serves on the national and international faculty of the End-of-Life Nursing Education Curriculum (ELNEC). He has published over a hundred articles related to pain management, symptom control, and issues in end-stage disease as well as conducting research studies. Mr. Coyne has received the Peaceful Death in American and Mayday Pain and Society Scholarships and has been awarded the Oncology Nursing Society's Excellence in Pain Management and a Schering Lectureship Recipient. He was named one of the 30 Visionaries in the field by the American Academy of Hospice and Palliative Medicine in 2013. Mr. Coyne has worked diligently to improve pain management and palliative care nationally and internationally.