Floppy

Tales of a Genetic Freak of Nature at the End of the World

Alyssa Graybeal

$34.99

Paperback

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English

Red Hen Press
01 October 2023

Memoirs

One of the first books to explore the emotional landscape of living with Ehlers-Danlos syndrome from a patient's perspective; a playful story of falling down, getting back up again, and realising you should have gone to the hospital sooner.

When ten-year-old Alyssa is diagnosed with the rare genetic connective tissue disorder Ehlers-Danlos syndrome, she vows not to let it stop her. Unfortunately, her efforts to avoid being ""too sensitive"" lead her to neglect not only her health but other aspects of her life as well. Twenty years later, she's finally forced to confront the reality of her condition head on. When she finds herself tangled in an unwieldy combination of chronic pain, a library job for which she is particularly ill-suited, and her wife's mystifying health problems, her body starts to unravel in ways she can no longer ignore. If pushing through is not the answer, what does homecoming to her floppy body even look like?

By: Alyssa Graybeal
Imprint: Red Hen Press
Country of Publication: United States
Dimensions: Height: 216mm, Width: 140mm,
ISBN: 9781636280974
ISBN 10: 1636280978
Pages: 280
Publication Date: 01 October 2023
Audience: General/trade , ELT Advanced
Format: Paperback
Publisher's Status: Active

Alyssa Graybeal is a queer writer and cartoonist whose work focuses on the emotional landscape of living with chronic illness and disability, in particular the connective tissue disorder Ehlers-Danlos syndrome. Floppy: Tales of a Genetic Freak of Nature at the End of the World. She lives in Astoria, Oregon.

Reviews for Floppy: Tales of a Genetic Freak of Nature at the End of the World

"""This is not a tidy story, but in its messiness, Graybeal's book reflects the complexity of life with EDS. Those coming to terms with their own chronic illness or that of a loved one will find this unflinching memoir illuminating."" —Rebecca Hopman, Booklist"